Terms of Service

Terms & Conditions of Use Agreement International Foundation for CDKL5 Research & CDKL5.com

Thank you for visiting our site. In this Terms & Conditions of Use Agreement (the “Agreement”), “IFCR”, “we”, “our” or “us” refers to International Foundation for CDKL5 Research, an Ohio non-profit corporation, CDKL5.com, and its affiliates. IFCR and its affiliates provide services and use of the website CDKL5.com (the “site”) to you (the “User”) subject to the following terms and conditions. Please visit this link to view our Terms of Service and Privacy Policy as a whole.

PLEASE READ THE ENTIRE TERMS & CONDITIONS OF USE CAREFULLY BEFORE YOU ACCESS OR USE THE SITE. IF YOU DO NOT AGREE TO ALL THE TERMS & CONDITIONS SET FORTH HEREIN YOU MAY NOT USE THE SITE OR ANY OF IFCR’S SERVICES OR RESEARCH FINDINGS. BY CONTINUING, YOU ARE DEEMED TO HAVE ACCEPTED THESE TERMS & CONDITIONS OF USE IN THEIR ENTIRETY.

YOU MUST BE AT LEAST 18 YEARS OLD TO ACCESS AND USE THE SITE OR ANY OF ITS FEATURES OR SERVICES.

NO MEDICAL ADVICE. THIS SITE IS NOT INTENDED FOR RENDERING OR OBTAINING MEDICAL ADVICE. BY USING THIS SITE YOU AGREE THAT YOU HAVE READ AND ACKNOWLEDGE THE MEDICAL DISCLAIMER.

Privacy Policy

International Foundation for CDKL5 Research (“IFCR”) values your privacy.

This Privacy Statement of the International Foundation for CDKL5 Research (“IFCR” “CDKL5.COM” “we” “us” or “our”) outlines how your personally identifiable information (“PII)  and other personal data (your “User Information”) will be collected, used, and shared in connection with your access to and/or use of CDKL5.COM and/or application and any content, features, services, or other offerings that IFCR may provide in connection therewith (collectively the application and any affiliate website shall be referred to as, the “Site”), as well as what information about you we collect through any third party application or third party sites, social network or social media sites (such as Facebook, Instagram, Twitter, Google, etc.) (collectively the “Applications”). This Privacy Statement also describes your choices and rights regarding the use, access, and correction or deletion of your User information. By using the Site, you consent to the use of your User information in accordance with this Privacy Statement. You will also be asked to provide clear and unequivocal affirmative consent to the collection, processing, and sharing of your User information via cookies and similar technologies. The Site is owned and operated by IFCR.

This Privacy Statement and its enumerated policies are intended to comply with Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 (the “General Data Protection Regulation” or “GDPR”) and provide appropriate protection and care with respect to the treatment of all of our User’s information in accordance with GDPR.